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Latest news

IF Call for applications for their 4th Youth with SBH "MY RIGHTS" Workshop (Estonia, 17-20 August 2019)

Last year two SBH Scotland members were accepted onto the International Federation for Spina Bifida and Hydrocephalus (IFSBH) workshop on your rights as a young person living with disability. Cailin and Murrin (pictured) both thoroughly enjoyed the experience. Now the IFSBH are asking for people to apply for this years FREE workshop.

Family Fundraising Event Raises a Staggering £21,000

A Glasgow family has raised more than £21,000 for Spina Bifida Hydrocephalus Scotland, in memory of their brother who had spina bifida.

In Utero Surgery for Spina Bifida

News broke last week of the first Scottish pregnancy to undergo the in utero fetal surgery for spina bifida. But what is this surgery and what does it involve?

When a baby is born with spina bifida their spinal cord is exposed and babies are operated on immediately to close the lesion. However, with the in utero fetal surgery, this operation takes place much earlier.

New stats reveal 91% of UK women have insufficient folate levels to support a reduction in neural tube defects

A study carried out on behalf of Public Health England and the Food Standards Agency which has been published today (16 March 2018), has revealed as many as 91% of women of childbearing age (16 – 49) in the UK are at increased risk of a neural tube defect (NTD) affected pregnancy due to a folic acid deficiency.

UK Government urged to add folic acid to flour after new study

A study published in Public Health Reviews has revealed previous data showing the set upper limit of folate was flawed. The experts involved are now urging the Department of Health to approve the fortification of flour with folic acid in order to help reduce neural tube defects (NTD), such as spina bifida, in unborn babies.

Aberdeenshire School Initiative Wins at National Awards

Spina Bifida Hydrocephalus Scotland’s work with Dalespark Primary School in Peterhead has seen it crowned winner of the ‘Education Partnership’ Award at the ScottishPower Foundation Awards in Glasgow last night (7 Nov).

European Accessibility Act is Under Threat

Millions of people in Europe with disabilities are still excluded from using basic products and services that are taken for granted by others such as withdrawing money from an ATM, entering a bank, a school, a university or any public building, using the underground etc. Europe needs a strong and ambitious European Accessibility Act but currently it's under threat!

CBE for SBH Scotland Chair, Dr Margo Whiteford

Spina Bifida Hydrocephalus Scotland are delighted to announce that their Chairperson, Dr Margo Whiteford, has been awarded the title of CBE (Commander of the British Empire) as part of the 2017 New Year’s Honours List for her services to charity and health.

Baby Bella inspires family to raise £1,500 in Kiltwalk

A Banchory dad, whose three-month old baby daughter, Bella, has spina bifida and hydrocephalus, is part of a team which raised nearly £1,500 for our specialist charity to help other babies with the same condition.

Justin Currie pledges his support to SBH Scotland

Del Amitri frontman Justin Currie visited Spina Bifida Hydrocephalus Scotland’s HQ in Cumbernauld to announce his unique auction prize for this year’s Scottish Entertainment and Hospitality Awards.

Are Scotland taking the next step?

Folic acid in flour - Ministers ask for advice on next steps.

Folic Acid Fortification Update

Spina Bifida Hydrocephalus Scotland (SBH Scotland) has long advocated folic acid fortification in flour. Our Chief Executive, Andrew H D Wynd, said, “We are happy to hear that Scottish Government are now urging UK Ministers to move the fortification process forward. The recent Scientific Advisory Committee on Nutrition (SACN) letter to Health Ministers highlighted serious concerns arising from the delay in fortifying flour so the UK need to be pushing for measures to be put into place to increase the folate status of women. In Scotland it is thought that nearly 50% of pregnancies are unplanned and mother’s to be will not have increased folic acid intake prior to conception. SBH Scotland believe that mandatory fortification will make a significant difference to the many planned and unplanned pregnancies diagnosed with Neural Tube Defects, of which spina bifida is the most common.”

New vacancy for Family Support Worker

Spina Bifida Hydrocephalus Scotland are now recruiting for a new Family Support Worker to be part of their Stronger Links: Stronger Families Project.

SBH Scotland launches yearlong campaign to mark 50th birthday

Specialist charity, Spina Bifida Hydrocephalus Scotland (SBH Scotland), formerly Scottish Spina Bifida Association, is celebrating its 50th year of support and advocacy for people across the country affected by these lifelong, complex conditions.

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Our latest news

Our Christmas Appeal is here
SBH Scotland's new Christmas Appeal is launched with a little bit of celebrity sparkle from BBC Strictly It Takes Two star Ian Waite and Scene Radio's Mr Fabulous!

"My mantra is, tell me I can't, and I will show you that I can"
On World Spina Bifida and Hydrocephalus Day, SBH Scotland member, Elizabeth Grant, shares some of her own insights into living with a disability and what it means to her.

And we're off! They came and dazzled us at our 2019 Strictly Come Prancing Launch Night
The stars of SBH Scotland's Strictly Come Prancing 2019 glittered on our red carpet at the Launch Night for the event.

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