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SBH Scotland set to host World's Biggest Burns online

Janey Godley

Specialist charity, Spina Bifida Hydrocephalus Scotland (SBH Scotland) is joining forces with international superstar Fran Healy, as well as Scottish comedians Janey Godley and Fred MacAulay to host the world’s biggest virtual Burns supper for FREE on Monday 25th January at 7pm.

The charity is working with partners across the globe to bring the virtual experience to as many people as possible. The world’s largest ever ‘in person’ Burns supper had 900 guests, and SBH Scotland hope that through the power of digital technology they will reach many more.

Although online, viewers can expect all the trimmings of a traditional Burns evening. The Address to a Haggis will feature alongside the main tribute to Burns, the Immortal Memory, recited by Comedian Bruce Fummey. Funny-man, and host of the event, Fred MacAulay, delivers the Toast to the Lassies as Janey Godley, who became a social media sensation after creating parody videos of Nicola Sturgeon during lockdown, will then give the reply.

Janey Godley said: “Scotland might be back in lockdown, but that shouldn’t stop us from celebrating the life of one of our greatest ever treasures. We have some fantastic acts lined up who will be bringing some much needed cheer during these difficult times, all while raising vital funds for a very important cause.

“The event is free to attend and I am looking forward to joining my fellow Scots around the globe for what we hope will be the world’s biggest Burns Supper.”

Travis front-man Fran Healy will perform Auld Lang Syne, while Scotland’s foremost Robert Burns re-enactor, Christopher Tait, will recite Tam o’Shanter. Other famous faces have also sent in their own Burns contributions!

The virtual event, which has only been made possible through the support of Scottish businesses Grant’s Haggis, Endura Cycle Apparel and Chisholm Hunter, is free to attend, with donations encouraged through the silent auction and raffle. The event is also supported by EventScotland through Scotland’s Events Recovery Fund.

Deborah Roe, SBH Scotland Director of Fundraising said: “2020 was a difficult year for everyone, but it was particularly challenging for those already in need. Our organisation, like many others in the third sector, has seen a significant drop in fundraising. We need support now more than ever and hope that this exciting new event will help raise vital funds for our charity.”

SBH Scotland’s 2021 Burns event will go live at 7pm on Monday 25 January 2021 on its YouTube channel www.youtube.com/user/ScottishSpinaBifida and Facebook channel www.facebook.com/SBHScotland/ The pre-recorded programme will also be available to view for one week.

Register NOW for your 'on the day' reminder and your event link.

Visit www.sbhscotland.org.uk/burns for information and updates on how you can get involved.

SBH Scotland win the Scottish Power Education Award

screenshot of a Tweet sent out by Scottish Power announcing SBH Scotland as winners of Education award.

We are delighted to announce that from a shortlist of exceptional organisations, SBH Scotland has been awarded the Scottish Power Foundation's 'Education Award' as part of their annual awards. Winners in each category receive an additional £5,000 funding boost, with runners-up receiving £2,500.

Scottish Power said, "The judges recognised its [SBH Scotland] brilliant work to help children with spina bifida to be fully included in the learning experience! 👏👏🙌"

"The judges recognised the charity’s work to support each child individually and to tailor its support to their bespoke needs. For example, it worked with partner organisations to ensure one child who required crutches to get around was able to fully participate in sporting activities at his school".

SBH Scotland was also praised for our work celebrating what makes our children unique and ensuring they all have the best possible start in life.

In addition, our member and fundraiser Lucy Abbeels received the Runner Up award for 'Charity Champion of the Year' for her consistent commitment to raising funds and awareness for our charity. Congratulations Lucy and thank you for your support.

 

Vital Input from SBH Scotland Staff and Members on new IFSBH Report

On International Day of Older Persons delighted to share the International Federation of Spina Bifida and Hydrocephalus new report on 'Ageing with Spina Bifida and Hydrocephalus'.

SBH Scotland have been involved in the production of this informative new publication which offers unique insights and present results from a large pan European study.
It considers the impact ageing with Spina Bifida and Hydrocephalus has on people across the continent and the British Isles. Vital input was offered by users and staff from SBH Scotland, who led the analysis including Kevin O'Donnell who is completing his professional Doctorate at the University of Edinburgh. Kevin, who has Spina Bifida said:
"It is clear that there are variations in the way people are being supported as they age across Europe. The analysis of data from 650 participants who completed the survey painted a fascinating picture. Aging can be a difficult experience but people can build thier resilience over time, if they are prepared for such a transition."

SBH Scotland continues to offer care and support to all those affected by spina bifida and/or hydrocephalus in Scotland. Please call us on 03455 211300 if you require information or support or email us

Got talent?

Spina Bifida Hydrocephalus Scotland (SBH Scotland) is calling on talented Scots to help save the organisation with a virtual fundraising event. To help raise vital funds, SBH Scotland will host its first virtual event ‘Sunday Night Social - Live’ on Sunday 07 June and is now looking for the people of Scotland to take part in a featured talent show.

The event will be hosted by renowned entertainer and Britain’s Got Talent finalist Edward Reid via video link and London west end star, John Mclarnon, will also be on hand to entertain on the evening.

Those aged 16 and above (or under 16s if performing with a larger group which includes over 16s) are being encouraged to send in films of themselves performing their talents, whether its singing, dancing, acrobatics, stand-up or more. Those chosen to feature in the show will have an excerpt of their audition shown at the start of the show. Then it's up to the public to vote via a text message that will donate £1 to the charity! The winning audition will receive a Prize Voucher, their audition will be shown in full at the end of the show and they will go on to win the chance of performing at one of SBH Scotland's big social events when they start again in 2021!

To send your audition to us...

  1. Auditions should be no longer than 4 minutes.
  2. Please film your audition in landscape format (ie with your phone on it's side. Normal way up if using a standard camera)
  3. Please use the highest resolution your phone or camera has.
  4. Email us your full name(s), ages and town you're from. Please make sure you have permission from everyone involved to send the content in to us.
  5. Please state your name at the start of the audition film.
  6. Please don't attach the file directly into an email as it will be too big. Instead you can either store files you want to share on a cloud storage service like Dropbox, Google Drive, or OneDrive then share the link with us via email. Alternatively use a large file sending service such as WeTransfer and make sure to email to talent@sbhscotland.org.uk. Please send all links to your downloads to our email.
  7. You agree to abide by SBH Scotland's terms and conditions

Want to get your ticket for Sunday Night Social - Live? Prices start at only £5! Buy Online NOW!

Deborah Roe, fundraising director at SBH Scotland said: “The cancellation of fundraising events across the country has had a devastating impact on the third sector. At SBH Scotland we receive little statutory support and the challenge ahead of us is incredibly difficult.

“Life in lockdown can be unsettling for everyone, especially for those who require extra support in their day-to-day lives. Our Sunday Night Social is about getting together – albeit virtually – and having a good time, whilst also helping our staff and volunteers continue to provide support to those who need it most.

“This event is the first in what we hope can be a series of monthly get-togethers. We've taken the excitement, entertainment and production values of our large scale events and taken them online for the ultimate Sunday night in. We know that there are some exceptionally talented people in Scotland who will be looking to show off their skills and this event will be the perfect forum for that. So, please join us by sending in videos of your talents, no matter how silly or funny they are!”

SBH Scotland welcome 'FABULOUS' new ambassador

Spina Bifida Hydrocephalus Scotland (SBH Scotland) has welcomed Scottish radio presenter and television personality, James Smith, as a charity ambassador.

James Smith aka Mr fabulous

Also known by his alter-ego, Mr Fabulous, James presents a number of shows on Paisley FM, Scene Radio and Camglen Radio and regularly works with STV, will be raising the profile of SBH Scotland, which works with young people and their families who have been affected by the life-long conditions of spina bifida and hydrocephalus.

James, from the West of Glasgow, has been involved with SBH Scotland for a number of years, giving support to our fundraising efforts and acting as a judge at our annual ‘Strictly Come Prancing’ event, which was inspired by the hit BBC show.

As ambassador, James’ main role will be to work with the charity to raise awareness of spina bifida and hydrocephalus, along with making people aware of the services the charity can offer, including support and social groups, financial advice and health clinics.

James will be joining SBH Scotland’s team of existing ambassadors and patrons, including Gordon Ramsay, Duncan Bannatyne, Nicola Cassells and Meggan Dawson-Farrell.

James said: “I am so excited to have joined SBH Scotland as an ambassador. I work with many charities, and I’ve been blown away by the incredible work SBH Scotland carries out to help those with spina bifida and hydrocephalus.

“I want to make sure that everyone who has been affected by these conditions knows that they are not alone; SBH Scotland has helped to create a community of people who can help and support you through whatever life throws at you, from me, other volunteers and their staff, to those attending the support groups.”

SBH Scotland are required to raise over £1 million in funding to continue to support over 3,500 children, young people and adults with our support services. With the unprecedented outbreak of Coronavirus we face further financial challenges as we work to ensure all members know they are not alone at the most isolating of times. To reach our targets we are now almost solely reliant on the generosity of the public and trust and grant making bodies after many fundraising initiatives have been postponed or cancelled.

Deborah Roe, fundraising director at SBH Scotland, said: “James has been a huge advocate for our charity for a number of years, and his appointment as charity ambassador now makes it official. It’s also an incredibly positive bit of news for us to share at such an uncertain time for so many.

“James is an incredibly compassionate person with a real desire to help others, just as we do at SBH Scotland. We’re looking forward to working with him for years to come, helping those who need our support.”

Find out more about SBH Scotland's Ambassadors or find ot how you can support us during the Covid-19 pandemic.

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Our latest news

SBH Scotland set to host World's Biggest Burns online
SBH Scotland set to host World's Biggest Burns onlineSBH Scotland's FREE online event welcomes Janey Godley, Fran Healy and Fred Macauley for exciting evening of Robert Burns

SBH Scotland win the Scottish Power Education Award
Children's inclusion in the learning experience helps SBH Scotland win this prestigious award.

Vital Input from SBH Scotland Staff and Members on new IFSBH Report
'Ageing with Spina Bifida and Hydrocephalus' report available now

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