General Enquiries 03455 211 811
Support Helpline 03455 211 300
Fundraising 03455 211 600

Latest news

Nursery takes on obstacles for SBH Scotland

calderwood nursery children and staff walking in park for SBH Scotland

A children’s nursery in Newton Mearns, have been so inspired by one of their parent’s charitable actions that they followed suit and created a sponsored adventure walk and obstacle course to raise funds for Spina Bifida Hydrocephalus (SBH) Scotland.

5 year old Andrew Carr, a pupil at Calderwood Lodge Primary School and Nursery, proudly told his nursery workers of his Dad’s fundraising; representing SBH Scotland in Comic Relief’s Red Nose and Spoon Challenge. After watching Sean’s gruelling 4 day expedition on TV, it then became the inspiration for the nursery staff to create a sponsored adventure walk for their own children, including Andrew.

As the sun shone, over 100 children, parents and 16 staff set off on an adventure walk around the school playground and then back to 4G pitch for an obstacle course. In doing so they raised a phenomenal £1616.86 for Andrew’s charity.

Andrew’s parents, Lynne and Sean, found out they were expecting a baby with spina bifida at their 20 week scan. At that point they “felt like the carpet had been taken from under" them. In a search for information they went online and found SBH Scotland, a charity specialising in the complex disabilities of spina bifida and hydrocephalus. Lynne made contact. Since that moment the charity got in touch and have been involved in Andrew’s life, providing information and support, as well as creating a network of support for the entire family.

child takes part in sponsored activity across beams for sbh scotland

Louise Thomson, Principal Teacher at Calderwood Lodge said, “Our children’s health and wellbeing is our top priority - we love to stay active. As soon as we heard about Sean’s endeavours we couldn’t wait to do something to support this great charity who mean so much to the Carr family.

She continued, “We’re overwhelmed at raising such a huge amount and I’d like to thank all the parents, children and staff who got involved.”

Deborah Roe, fundraising director at SBH Scotland said; “We’re incredibly grateful to Calderwood Lodge Nursery Class. Their thoughtful donation will go towards our family support service which provides key workers who personalise support for families like the Carrs. Each year we need to raise £1million pounds and without donations like this we wouldn’t be there for families at a time when they need us the most.”

If you’d like to create your own fundraising challenge like Calderwood Lodge or take part in a pre-arranged sponsored activity please contact Lynsey Hamilton, Fundraising Manager, on 03455 211 600 or email

Visit our YouTube channel to watch the story which inspired this challenge. Sean's Story is available to watch now.

Scottish Drag Queens Call on Others to Join in with Jubilee Jump for Charity

Drag Queens Nadina Pish and Cherry West pose with charity staff Lynsey and Clare

Two Scottish Drag Queens are set to leap from a platform suspended 40ft above the dramatic Pass of Killiecrankie, as part of a charity bungee jump, and they are calling on more people to take part.

Two fierce Queens have already signed up to slay the epic challenge which has been organised in aid of Scottish charity, Spina Bifida Hydrocephalus Scotland (SBH Scotland.)

The brave and glamorous participants will take the leap on Sunday 5 June, coinciding with The Queen’s Platinum Jubilee weekend, but Nadina Pish and Cherry West, are urging others to get involved in their fundraising celebrations.

Nadina said: “What better way to mark Queen Elizabeth’s long and proud reign of Britain than to throw all of our energy into an adrenaline fuelled bungee jump and highland swing to help this fabulous charity!

“So far, Cherry and I are taking part, but we’d love this to be biggest charity challenge of 2022, so I’m calling on all my friends, fellow Queens and all SBH Scotland’s supporters to join us in this FABULOUS extravaganza.

“SBH Scotland is an incredible organisation, doing great work, with little statutory support. Like lots of other charities the last two years have been devastating for the charity and it’s important that as many people as possible do what they can to help. So come on, let’s do it!.”

Lynsey Hamilton, Fundraising Manager at SBH Scotland, said: “We are incredibly grateful to have lovely, kind hearted people like Nadina and Cherry leading the way in encouraging others to register for this exciting event.

“This event will be our second big outdoor fundraising challenge of the year so we want people to register now to avoid disappointment – this will be a Jubilee Jump to remember!”

Funds raised by the participants of the bungee/swing jump event will go back into the charity which directly supports over 3,500 people affected by the lifelong disabilities of spina bifida and hydrocephalus. The organisation carries out vital services for those who need it most, including offering home support workers, financial advice, and group family sessions.

We are looking for people across Scotland to take part. You must register in advance. SBH Scotland’s Jubilee Bungee Jump and Highland Swing Challenge is open to everyone (aged 14 and over) and will take place on Sunday 5 June 2022 at the Pass of Killiecrankie, a dramatic gorge on the River Garry in Perth & Kinross.

For more information, or to register, please contact Lynsey Hamilton or visit our website

Auntie inspires virtual Ben Nevis Trek Challenge

Eve and Murren stood in their school before their fundraising challenge. A tally chart of Ben Nevis laps in the background.

Two Livingston students, were inspired to tackle Scotland’s highest mountain virtually in support of Spina Bifida Hydrocephalus (SBH) Scotland, a charity close to their hearts.

17 year old Eve Robertson, whose Auntie Shona, has spina bifida, came up with the twist on the standard Ben Nevis Trek Challenge with best friend Murren Binnie. They made a plan to walk up and down the Dean Community High School Stairs 500 times until they’d covered the 1,345 metres which they’d have walked to reach the Ben Nevis peak. In doing so they raised £629.00 for SBH Scotland.

Eve said, “Murren and I really wanted to raise money for a worthwhile cause and because of my Auntie we were aware of the great work that SBH Scotland do. Murren and I both love walking so this seemed like a great challenge for us. We’re so grateful to our school, friends and family for all of their support on the day and during the planning stages.

Eve and Murren in action; running up and down their school stairwells

She continued, “The 500 laps of the school stairs took us less time than expected so we actually decided to double the challenge to 1000 laps – I guess you could say we walked up Ben Nevis twice!

Mrs Alison, Head Teacher of Dean Community High School said, ”Everyone at the school is extremely proud of Eve and Murren, not only for raising money but also for raising awareness of the conditions they’re supporting.”

SBH Scotland was formed in 1965 by a group of parents who each had a child with spina bifida and hydrocephalus. Over 55 years later, the charity now supports over 4,000 children, young people, adults, their family members and carers across Scotland with a personalised service of support workers, groups, health check clinics, a respite cottage, play sessions, workshops and helpline.

Deborah Roe, fundraising director at SBH Scotland said; “We’re incredibly grateful to Eve and Murren for their active support. We’d like to thank them and all those who kindly donated. Donations continue to mean more than they ever have as we support families through uncertain times. Each pound donated assists us in being there for anyone affected by these lifelong, complex disabilities at a time when they need us the most.”

If you’d like to follow in Eve and Murren’s footsteps and take part in a fundraising challenge please contact Lynsey Hamilton, Fundraising Manager, on 03455 211 600 or email.

Find out more about our range of Challenges

Falkirk family inspired to raise funds for charity after birth of baby girl

Kirsty and her family ready for their 13 mile walking challenge

A Falkirk woman, whose eight month old baby grand-daughter has spina bifida and hydrocephalus, is part of a team which raised over £1,600 for Spina Bifida Hydrocephalus (SBH) Scotland to help other babies with the same condition.

Kirsty Brown, along with her daughter’s Hannah, Kyla and stepdaughter, Rachael, created their own 13 mile walking challenge from Bainsford to the Kelpies and asked friends and family to sponsor them.

Spina Bifida occurs early in pregnancy and Kirsty’s Step-daughter, Rachael, found out at the 20 week scan that her baby, Sophie, would be born with the conditions which led to a major operation within the first 24 hours of her life to close the hole in her back.

The money raised will be used to provide personalised home and hospital support for families with new born babies who have spina bifida and/or hydrocephalus.

Kirsty says, “We were sat one evening when a plan emerged to do something for this amazing charity. Before we knew it, a WhatsApp group was created and a date was set!

She continues, “We all thoroughly enjoyed the walk, although we were very tired! My four year old grand-daughter, Maisie, joined us at different bits en route which helped lift our spirits and we were spurred on at the end because baby Sophie was waiting at the finish line.”

SBH Scotland was formed in 1965 by a group of parents who each had a child with spina bifida and hydrocephalus. Over 55 years later, the charity now supports over 4,000 children, young people, adults, their family members and carers across Scotland.

Deborah Roe, fundraising director at SBH Scotland said; “We’re incredibly grateful to this lovely family who came together to support us. We’d like to thank them and all those who kindly donated, raising three times more than their original target of £500! Because of Covid-19 we lost half of our usual income last year; donations have never meant more than they do right now.”

If you’d like to support SBH Scotland this festive season donations can be made via or fundraising activities can be booked for next year. Anyone interested in helping raise money should contact Lynsey Hamilton, Fundraising Manager, on 03455 211 600 or email

Online Healthcare Transition Course for professionals goes LIVE!

screenshot of the SBH Scotland Healthcare Transitions Online Course

SBH Scotland believe one of the most important solutions for improving the transition from paediatric to adult healthcare is education. Therefore, we've created a course aimed at healthcare professionals about the ins and outs of transition.

Through our transition project we've discovered there is a lack of knowledge and understanding in the healthcare system about transition; specifically, transition planning, transition policy, the rights of young people, and about use of appropriate communication strategies based on the age, mental health and cognitive abilities of young people with complex conditions. This leads to inconsistencies in transition which result in a negative experience for young people.

There are correlations between negative experiences of transition, ill-health and reduced wellbeing. This is because we are seeing young people and their families shy away from healthcare, causing preventable complications with their health to occur.

We would like to see all young people achieving a successful and supportive transition which sets them up to thrive in adulthood.

About the Course

This course was created by SBH Scotland’s Clinical, Research and Innovation team, with support from a steer group including members from the Queens Nursing Institute Scotland, NHS Inform and Glasgow Caledonian University. The team developed their knowledge of the transition process and compiled relevant resources to make it easier for healthcare professionals to access.

The course:

  • Takes around four hours to complete and would be a valuable asset to any healthcare professional who engages with the transition process or young people approaching transitioning age.
  • Offers an in-depth analysis of the different stages of transition and asks learners to consider their role in this process. The course promotes a person-centred and holistic approach to transition with transition planning taking place as early as possible in the young person’s journey towards adulthood.
  • Aims to improve transition and ensure that every young person has a successful transition to adult healthcare services.

Access the course HERE

More about ‘Transition’

‘Transition’ is the process of moving from paediatric to adult healthcare services for young people with complex conditions and their families and/or carers. This process can be challenging at a time when a young person is growing older and gaining more independence. The age for transition tends to be when the young person is between 15 and 19 years old, however some young people experience it before or after this time. Quite often the process will begin when the young person is not ready. We have concerns about the effect that this will have on the young person as they develop into an adult. In 2014, SBH Scotland published a report highlighting that the lack of planning before moving from paediatric to adult healthcare (transition) placed significant burden on unpaid carers (Levy et al 2014). The study also warned that leaving young people without the continued support they may need put them at risk of not reaching their full potential. Therefore, to tackle this we are keen to encourage bettered education and planning of the process in young people, families and healthcare professionals.

SBH Scotland would like preparation for this process to begin when the young person is around 14 years old and take place for around two years before they are transferred across services. This is based on ARC Scotland’s ‘Principles of Good Transitions 3’ which advocates for transition planning to be supported between the ages of 14 and 25. Taking this support up to the age of 25 means that transition readiness can be taken into account and that continued support can be offered post-transition. Furthermore, it has been found that 90% of parents and carers are unaware of their being any transition plan in place for their child (ARC Scotland figure). A single plan with a single contact assigned to assist with the transition journey would help to address this. Our course takes learners through transition planning and suggests ways in which the process can become more consistent and person-centred.

Take the course!

As an organisation we are ‘there for the journey’ and therefore are working to improve our own transition support. However, we are advocating for more empathy and consistency in the transition process within the healthcare system. We encourage healthcare professionals, or anyone wanting to learn more about the transition process, to take the course and join us in pushing for successful transition.

Access the course HERE

Other Useful resources:

More resources for healthcare professionals

SBH Scotland transition card game

‘Our Voices’ Digital Stories on Transition

Support us

Because of you we provide a lifetime commitment of support. Please continue to support us or donate today. Thank you.

Make a donation

Our latest news

Eastfield Primary Stomp into Action for SBH Scotland
Eastfield Primary Stomp into Action for SBH ScotlandSpiney the Diney walks with all the pupils to raise amazing amount

Sharon's Rolling Challenge raises over £750
"If it wasn’t for SBH Scotland, I don’t know where I’d be today"

Chisholm Hunter offer Glimmer of Hope to SBH Scotland
Generous donation from supporters helps to fill funding void left by cancelled event

More news
Follow @SBHScotland on Twitter

SBH Scotland on Facebook

Our newsletter

We’d like to keep you up-to-date with information on our charity.

Sign up here for our newsletters.

* indicates required