General Enquiries 03455 211 811
Support Helpline 03455 211 300
Fundraising 03455 211 600

Latest news

Keeping connected in a crisis

The team at SBH Scotland have risen to all the challenges the current virus pandemic has thrown at it and are doing all they can to keep connected with SBH Scotland members at a time when feeling socially isolated is at its height.

SBH Scotland Clinical Nurse Specialist, Sharon Levy uses video chats to keep in touch with SBH Scotland members during coronavirus lockdown

At Spina Bifida Hydrocephalus Scotland (SBH Scotland) our members and staff are our utmost priority and in a time of constant change that sentiment remains stronger than ever.

Although the Coronavirus has brought with it many restrictions and uncertainty, SBH Scotland members are not alone in coping with the challenges it may bring them.

SBH Scotland have worked to continue a vital support service albeit in slightly different formats than normal.

Until further notice the Dan Young Building, our Head Office in Cumbernauld, is closed to members and following government guidelines we have made the decision to stop home visits temporarily. We have also postponed our support and social groups in their traditional formats. However, our Family Support Team remain dedicated to supporting members and are there therefore offering a:

Helpline: 03455 211 300. Call us Monday to Friday between 9am and 5pm and we will be there to talk with you or just be a listening ear for your concerns.

Check-In Service: Regular contact through a weekly phone service to check in and make sure members are doing ok.

Support Email

Coronavirus Hub and Information: We have a dedicated page for information relating to the Coronavirus. If members have any concerns of how they could be affected they can also click on our link and have a video chat with one of our clinical team.

Online Groups and workshops: Our team are looking at a range of technology so we can continue social interactions between members online as well as launch online workshops.

YouTube: Our YouTube channel is home to many useful resources during times such as these including Have A Go films to encourage children's play and development and our support worker Kerry has also been filming 'dancercise' videos for thos with limited mobility. Visit our channel now to subscribe.

Facebook private groups: We continue to have dedicated private spina bifida and hydrocephalus groups for SBH Scotland members on Facebook.

No one knows the long term effect that the Coronavirus will have in Scotland but whatever happens the SBH Scotland team are doing all they can to stay connected to their comunity. Contact us if you need support.

Sign up to SBH Scotland for a healthy challenge this February!

Craig Houston after running the Great Scottish Half Marathon for SBH Scotland.

It's February, and people are already letting their new years resolutions of better health and fitness fall by the wayside! However a guaranteed way to continue with your health goals is to set yourself a challenge and stick to it. At SBH Scotland we're always delighted at the number of people who choose to walk, roll, stroll and run for us throughout the year and by signing up to an event it means a date is set and a plan of action can be put into place.

This February we're asking everyone to join our team and sign up to an event for SBH Scotland. We can offer support throughout your fitness journey with us and we are always on hand for any questions you may have. If you want to take part in a challenge contact our team by email or call Lynsey on 03455 211 600.

This month we'll be featuring some of those fundraising heroes who have already taken part in a sponsored fitness challenge for us so please make sure you're following us on Instagram and Facebook.

In the meantime Craig Houston-Haynes, who has taken part in the Great Scottish Run Festival for us an amazing 3 times, has emailed in his top running tips for taking part in a race.

My advice is for a half marathon

  • Definitely you need to have put in the miles and trained for it - ask yourself have you done enough?Work to one of the many training plans that are available online for your level of running experience - these are invaluable
  • Be hydrated the week leading up to the race - drink sips often and not try and drink it all on the day of the race...I've done that and you end up needing to pee every half an hour! Not comfortable or fun especially with toilets spread out every 4 miles or so!
  • Don't start too fast and get caught up with those who sprint off too fast. For the first few km/miles start slow! And tell yourself to slow down because you probably are still running too fast at this part of the race. It allows you to get into a momentum and not run out of energy half way through the race and struggle in the last few miles.
  • I took all these on board and knocked 10 minutes of my best time so it works.
  • Finally, Enjoy the day and fun round about you. It is such an achievement and the feeling you get when you finish is just brilliant - then go and enjoy that well deserved pint!

Here's our Ella with a quick reminder!

If you haven't booked your place yet, it's not too late! A Question of Burns is taking place on Thursday 23rd January at the Glasgow Hilton and we have a few tables remaining. SBH Scotland member and Question of Burns Co-Host, Ella Chambers, reminds us to get our tickets for the spectacular corporate Burns Supper Event.

Call us today on 03455 211 600 to book or go online.


Our Christmas Appeal is here

We're delighted to launch our 2019 Christmas Appeal where we're asking everyone to get involved. Any donation large or small will help to ensure every baby, child, adult parent, family member and carer can receive our lifetime commitment of support in 2020 and beyond. If you are unable to donate, please share our appeal far and wide by following our posts on Facebook, Twitter, LinkedIn, Instagram or YouTube.

DONATE now online.

To add to the magic of Christmas we'd like to thank the lovely Ian Waite and James Smith for kindly getting involved with our appeal film.

Enjoy and a very merry festive season to all!

"My mantra is, tell me I can't, and I will show you that I can"

Elizabeth in her adapted vehicle

Elizabeth Grant is 63 and has spina bifida yet she has never let that define who she is! Today, on World Spina Bifida and Hydrocephalus Day she wanted to share some of her own insights into living with a disability and what it means to her.

“I was one of seven children so there wasn’t much time for molly-coddling when I was born! My parents were practical people so when my brothers were doing something my dad would just try to find a solution so I could take part in the activity as well. They always looked for a way that I could do something rather than think I couldn’t.

Because of this, I am as self-sufficient as I can be. That is not to say life is easy as it’s not. Over the years I have been through a lot, about 40 years ago I had my right hipbone removed and for nearly 20 years I have had an open wound which the surgeon can’t do anything about without creating a whole other set of issues. Through all of that the biggest challenge I have faced was losing my husband 12 years ago. We complemented each other so well; it was difficult to deal with.

Despite all of this, I want to show others that life does not stop because of disability. I make sure that I spend my time doing everything that I want to in life, I let nothing hold me back. I go to tai-chi class, I’m involved in my local church, I love my garden, I’m a Cub leader and I have a courageous cat called Jasmine. I even had the opportunity to go canoeing recently and loved it – although thanks to health and safety, by the time I had all the life jackets and harnesses on I couldn’t move my arm to use the oars!”

SBH Scotland then asked Elizabeth what advice she would give to younger people living with disabilities. She continued,

“Don’t let people tell you what you need or want – you know what you want and you know your own condition. It always makes me very frustrated when people tell me what I want, for instance, I use a manual wheelchair and people constantly tell me I need a powerchair. However, I don’t want a powerchair, I am very happy manually pushing myself, so I will continue to do so!

It’s also so important to try and do as much as you can for yourself and fight tooth and nail for the right to do so.”

Many thanks to Elizabeth for sharing her story. #WSBHD

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