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Our Christmas Appeal is here

We're delighted to launch our 2019 Christmas Appeal where we're asking everyone to get involved. Any donation large or small will help to ensure every baby, child, adult parent, family member and carer can receive our lifetime commitment of support in 2020 and beyond. If you are unable to donate, please share our appeal far and wide by following our posts on Facebook, Twitter, LinkedIn, Instagram or YouTube.

DONATE now online.

To add to the magic of Christmas we'd like to thank the lovely Ian Waite and James Smith for kindly getting involved with our appeal film.

Enjoy and a very merry festive season to all!

And we're off! They came and dazzled us at our 2019 Strictly Come Prancing Launch Night

The stars of SBH Scotland's Strictly Come Prancing 2019 glittered on our red carpet at the Launch Night for the event.

We welcomed 8 couples who will all be competing for the coveted #SCPrancing Glitterball Trophy in front of celebrity judge Ian Waite and head judge Mr Fabulous. The night also gave all our couples the chance to meet their dance instructors who be guiding them from ballroom beginners to pros in only 10 weeks!

All couples will be taking the time to not only learn dance but to raise vital funds for Spina Bifida Hydrocephalus Scotland and we're so grateful to everyone supporting them in their cha cha challenge!

JOIN US on Saturday 9th November at the Glasgow Hilton to see if your favourite couple can become the champions. Tickets available now online

Family Fundraising Event Raises a Staggering £21,000

A Glasgow family has raised more than £21,000 for Spina Bifida Hydrocephalus Scotland, in memory of their brother who had spina bifida.

The McGill family come together to celebrate the life of much loved brother Michael

Michael McGill (pictured below), would have been 50 years old on 10 February, but sadly passed away last April.

The late Michael McGill who would have been 50 in February 2019

To celebrate his life, Michael’s brother, Paul McGill, organised an event at Glencairn Social Club, which was attended by more than 300 people, including close friends, family members and people from the local community.

As well as paying tribute to Michael, the family raised funds for SBH Scotland, an organisation providing personalised support to children, young people and their families affected by the lifelong conditions of spina bifida and/or hydrocephalus.

With the support of a number of local businesses, the McGill family held a silent auction and raffle, where one lucky attendee won a round trip to New York and another picked up a signed Celtic football shirt.

Paul said: “Michael’s life was full of love, joy and laughter, and I know he would have had a ball at his 50th birthday party. It was a really special evening, and to have all his friends and family together would have put a big smile on his face.

“While Michael was born with spina bifida, he remained very independent and mobile. With a big family support network, he didn’t require the services of SBH Scotland but was aware of the great work the organisation carried out in the community.

“To honour his memory, we’ve made it a family mission to raise as much as possible for the charity. Last year we were able to donate £6,000 bringing the total amount raised so far to £21,600. But we’re not stopping there - some of the family will be doing the SBH Scotland Skydive this summer.”

Deborah Roe, fundraising director at SBH Scotland, said: “By all accounts Michael was a kind-hearted, fun-loving and inspirational individual, who proved every day that spina bifida doesn’t need to stop you living a full and happy life.

“For his family to take on so many ventures to help others affected by the conditions is incredible, and I would like to thank them for what they have done for our organisation.”

To donate to the McGill family fundraising efforts please visit www.justgiving.com/fundraising/paul-mcgill4

Find out more about supporting SBH Scotland

Scottish stars get ready to wow at Strictly Come Prancing

A host of inspiring dancers, including some famous Scottish faces, are getting ready to do their bit for cha-cha-charity by taking part in Spina Bifida Hydrocephalus Scotland (SBH Scotland)’s first ever Strictly Come Prancing event.

Saturday night fever is set to sweep through Glasgow’s Double Tree Hilton Hotel on 10 November, when 13 couples – including Heart Scotland radio presenters Paul Harper and Lynne Hoggan, as well as reality star Brian Matthews, formerly of GLOW – take to the dancefloor to try to impress head judge TV fashionista Gok Wan. The ‘How To Look Good Naked’ star will be joined on the judging panel by singing sensation Carol Laula, radio presenter James Smith and dancing instructor April Stuart Macrae.

To make sure they know their mambos from their rhumbas, the couples will prepare for their big night with 10 weeks of professional coaching at April’s Street Feet’s dancing studio.

Taking its lead from the hit BBC show, SBH Scotland’s Strictly Come Prancing distinguishes itself from similar events by opening up the contest to same sex couples. Encouraging inclusivity, the inaugural event will see three couples of the same sex competing for the coveted Glitterball Trophy.

All proceeds from the night will go to SBH Scotland and our services to support children, young people and families affected by lifelong disabilities spina bifida and hydrocephalus.

Strictly Come Prancing competitor, and Heart radio host, Lynne Hoggan said; “I am really looking forward to taking part in this event, I guess every girl wants to dance like Baby from Dirty Dancing at some point in their life. Plus, it's a great new way to keep me in shape and I can't wait to get all glammed up for the big night.”

Richard Donald, events manager at SBH Scotland, said: “Strictly Come Prancing is not just about raising money for the charity, it’s about flying the flag for diversity and equality, as well as having a bit of fun.

“We’ve got a great line up, and it’s shaping up to be an incredible night. All 26 dancers have committed to putting themselves through 10 weeks of training to get in the best shape possible for the big night and they are all desperate to show off their moves to Gok, and the other judges.

“We look forward to seeing them take to the stage in November, and hope to see as many people in the crowd as possible.”

Tickets for the event are now on sale online at a cost of £65 per person, or £600 for a table of 10.

Clackmannanshire Mum Inspired by Daughter as she Tackles Charity Triathlon

Kirstie Dawson with Daughter Meggan

A Tullibody mum has followed in her daughter’s tracks when she tackled her first triathlon to raise funds for SBH Scotland.

Kirstie Dawson (45) took on the Stirling Super Sprint on June 3, a gruelling test of endurance that requires competitors to swim 400m, cycle 17km and then run for 3km whick she completed in an incredible 67 minutes and earning a new personal best in the 17km cycle.

Kirstie, who raised over £1000 for the charity, revealed her motivation for taking on the challenge comes from daughter, Meggan. The 25-year-old was born with spina bifida, a fault in the spinal column where vertebrae do not form completely, and has hydrocephalus - a condition where increased pressure on the brain can cause social, emotional, cognitive and behavioural difficulties - but that hasn’t deterred her from fulfilling her sporting ambitions.

The wheelchair racer, who competed in the 2014 Commonwealth Games in Glasgow and at one point held Scottish national records over eight separate distances, had been in training for this year’s London Marathon when she picked up pressure sores and is now taking time out to recover before taking on her next challenge. Mum Kirstie stepped in to ensure her daughter’s fundraising intentions wouldn’t be in vain.

She said: “Meggan was upset when she realised she wouldn’t be able to take part in the marathon as she had hoped to raise funds for SBH Scotland so I decided to take up the mantle. My friends persuaded me to sign up for my first triathlon so I’ve been hard in training for that. Meggan has been laughing at me looking totally exhausted as it’s usually the other way around!”

Training for the triathlon has made Kirstie even prouder of Meggan who, she reveals, has undergone more than ten operations to insert shunts which reduce swelling on the brain, and repeat bowel surgery without ever complaining.

Kirstie added: “I’m really proud of her. I’ve never met anyone so resilient and upbeat despite everything she’s been through. She jokes about the fact the operation scars on her tummy are in the shape of a giraffe!"

“She’s a true inspiration and always looking to help others. She recently had all her hair chopped off so she could donate it to a charity that helps children who have lost their hair because of leukemia and that’s just typical of her.”

SBH Scotland are in the process of creating a children’s book about Meggan to inspire other children with disabilities to never give up and not be afraid to try new things.

Her mum added: “The hardest thing for Meggan when she was growing up was that there weren’t many other kids with disabilities in our area."

“Then she was a teenager she went to a sports camp and got to meet kids like her who didn’t want their condition to define them. Hopefully this book will let other children with spina bifida or hydrocephalus realise they are not alone and that they can achieve anything they set their minds to.”

"The services and support that SBHS have given us as a family is invaluable, i am in no doubt Meggan would not be the young, confidant young lady she is today without their drive to encourage and enable her to become the best version of herself"

Deborah Roe, fundraising director at SBH Scotland said: “Meggan’s story is truly inspirational and it’s great to see mum Kirstie getting involved now, too, in her own athletic endeavours. We wish her all the best for her triathlon."

“As a charity, we rely solely on the efforts of our supporters and because of people like Meggan and Kirstie we are able to offer a range of services from weekly support groups to tailored activities for children and young people and advice for families affected by the conditions."

You can help contribute to Kirstie's fundraising efforts.

For more information on services offered by SBH Scotland please contact us

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Our latest news

Our Christmas Appeal is here
SBH Scotland's new Christmas Appeal is launched with a little bit of celebrity sparkle from BBC Strictly It Takes Two star Ian Waite and Scene Radio's Mr Fabulous!

"My mantra is, tell me I can't, and I will show you that I can"
On World Spina Bifida and Hydrocephalus Day, SBH Scotland member, Elizabeth Grant, shares some of her own insights into living with a disability and what it means to her.

And we're off! They came and dazzled us at our 2019 Strictly Come Prancing Launch Night
The stars of SBH Scotland's Strictly Come Prancing 2019 glittered on our red carpet at the Launch Night for the event.

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