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Latest news

Got talent?

SBH Scotland welcome 'FABULOUS' new ambassador

Spina Bifida Hydrocephalus Scotland (SBH Scotland) has welcomed Scottish radio presenter and television personality, James Smith, as a charity ambassador.

James Smith aka Mr fabulous

Keeping connected in a crisis

The team at SBH Scotland have risen to all the challenges the current virus pandemic has thrown at it and are doing all they can to keep connected with SBH Scotland members at a time when feeling socially isolated is at its height.

SBH Scotland Clinical Nurse Specialist, Sharon Levy uses video chats to keep in touch with SBH Scotland members during coronavirus lockdown

Here's our Ella with a quick reminder!

If you haven't booked your place yet, it's not too late! A Question of Burns is taking place on Thursday 23rd January at the Glasgow Hilton and we have a few tables remaining. SBH Scotland member and Question of Burns Co-Host, Ella Chambers, reminds us to get our tickets for the spectacular corporate Burns Supper Event.

Our Christmas Appeal is here

We're delighted to launch our 2019 Christmas Appeal where we're asking everyone to get involved. Any donation large or small will help to ensure every baby, child, adult parent, family member and carer can receive our lifetime commitment of support in 2020 and beyond. If you are unable to donate, please share our appeal far and wide by following our posts on Facebook, Twitter, LinkedIn, Instagram or YouTube.

And we're off! They came and dazzled us at our 2019 Strictly Come Prancing Launch Night

The stars of SBH Scotland's Strictly Come Prancing 2019 glittered on our red carpet at the Launch Night for the event.

IF Call for applications for their 4th Youth with SBH "MY RIGHTS" Workshop (Estonia, 17-20 August 2019)

Last year two SBH Scotland members were accepted onto the International Federation for Spina Bifida and Hydrocephalus (IFSBH) workshop on your rights as a young person living with disability. Cailin and Murrin (pictured) both thoroughly enjoyed the experience. Now the IFSBH are asking for people to apply for this years FREE workshop.

Family Fundraising Event Raises a Staggering £21,000

A Glasgow family has raised more than £21,000 for Spina Bifida Hydrocephalus Scotland, in memory of their brother who had spina bifida.

In Utero Surgery for Spina Bifida

News broke last week of the first Scottish pregnancy to undergo the in utero fetal surgery for spina bifida. But what is this surgery and what does it involve?

When a baby is born with spina bifida their spinal cord is exposed and babies are operated on immediately to close the lesion. However, with the in utero fetal surgery, this operation takes place much earlier.

Cailin's Experience - ‘My rights: Independent living, activism and participation for young people with Spina Bifida and/ or hydrocephalus’

In October, IFSBH ran a 3 day course in Lisbon, Portugal, for people aged 18 – 35 called: ‘My rights: Independent living, activism and participation for young people with Spina Bifida and/ or hydrocephalus’. One of the key things all participants had to do on their return to their respective countries was share their experience. Cailin and Murrin attended from our organisation and this is Cailin's story in her own words.

Murrin's Experience - ‘My rights: Independent living, activism and participation for young people with Spina Bifida and/ or hydrocephalus’

In October, IFSBH ran a 3 day course in Lisbon, Portugal, for people aged 18 – 35 called: ‘My rights: Independent living, activism and participation for young people with Spina Bifida and/ or hydrocephalus’. One of the key things all participants had to do on their return to their respective countries was share their experience. Cailin and Murrin from our organisation attended and this is Murrin's story from her journey.

Strictly Come Prancing 2018 – Meet the Judges!

In only 6 weeks we welcome our new Strictly Come Prancing event!

Scottish stars get ready to wow at Strictly Come Prancing

A host of inspiring dancers, including some famous Scottish faces, are getting ready to do their bit for cha-cha-charity by taking part in Spina Bifida Hydrocephalus Scotland (SBH Scotland)’s first ever Strictly Come Prancing event.

GDPR is finally here!

Unless you've been lucky enough to have been away for the past couple of months in some exotic location, the chances are you have not only heard about GDPR but are, by now, very tired of hearing about it!

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Our latest news

Got talent?
Got talent?SBH Scotland are looking for talented line-up for their dazzling new online event

SBH Scotland welcome 'FABULOUS' new ambassador
Positive news in uncertain times

Keeping connected in a crisis
SBH Scotland's support team use their creativity and technology to best effect during pandemic

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