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Latest news

Vital Input from SBH Scotland Staff and Members on new IFSBH Report

On International Day of Older Persons delighted to share the International Federation of Spina Bifida and Hydrocephalus new report on 'Ageing with Spina Bifida and Hydrocephalus'. SBH Scotland have been involved in the production of this informative new publication which offers unique insights and present results from a large pan European study. It considers the impact ageing with Spina Bifida and Hydrocephalus has on people across the continent and the British Isles. Vital input was offered by users and staff from SBH Scotland, who led the analysis including Kevin O'Donnell who is completing his professional Doctorate at the University of Edinburgh. Kevin, who has Spina Bifida said: "It is clear that there are variations in the way people are being supported as they age across Europe. The analysis of data from 650 participants who completed the survey painted a fascinating picture. Aging can be a difficult experience but people can build thier resilience over time, if they are prepared for such a transition."
Read the report

SBH Scotland continues to offer care and support to all those affected by spina bifida and/or hydrocephalus in Scotland. Please call us on 03455 211300 if you require information or support or email us

Got talent?

SBH Scotland welcome 'FABULOUS' new ambassador

Spina Bifida Hydrocephalus Scotland (SBH Scotland) has welcomed Scottish radio presenter and television personality, James Smith, as a charity ambassador.

James Smith aka Mr fabulous

Keeping connected in a crisis

The team at SBH Scotland have risen to all the challenges the current virus pandemic has thrown at it and are doing all they can to keep connected with SBH Scotland members at a time when feeling socially isolated is at its height.

SBH Scotland Clinical Nurse Specialist, Sharon Levy uses video chats to keep in touch with SBH Scotland members during coronavirus lockdown

Here's our Ella with a quick reminder!

If you haven't booked your place yet, it's not too late! A Question of Burns is taking place on Thursday 23rd January at the Glasgow Hilton and we have a few tables remaining. SBH Scotland member and Question of Burns Co-Host, Ella Chambers, reminds us to get our tickets for the spectacular corporate Burns Supper Event.

Our Christmas Appeal is here

We're delighted to launch our 2019 Christmas Appeal where we're asking everyone to get involved. Any donation large or small will help to ensure every baby, child, adult parent, family member and carer can receive our lifetime commitment of support in 2020 and beyond. If you are unable to donate, please share our appeal far and wide by following our posts on Facebook, Twitter, LinkedIn, Instagram or YouTube.

And we're off! They came and dazzled us at our 2019 Strictly Come Prancing Launch Night

The stars of SBH Scotland's Strictly Come Prancing 2019 glittered on our red carpet at the Launch Night for the event.

IF Call for applications for their 4th Youth with SBH "MY RIGHTS" Workshop (Estonia, 17-20 August 2019)

Last year two SBH Scotland members were accepted onto the International Federation for Spina Bifida and Hydrocephalus (IFSBH) workshop on your rights as a young person living with disability. Cailin and Murrin (pictured) both thoroughly enjoyed the experience. Now the IFSBH are asking for people to apply for this years FREE workshop.

Family Fundraising Event Raises a Staggering £21,000

A Glasgow family has raised more than £21,000 for Spina Bifida Hydrocephalus Scotland, in memory of their brother who had spina bifida.

In Utero Surgery for Spina Bifida

News broke last week of the first Scottish pregnancy to undergo the in utero fetal surgery for spina bifida. But what is this surgery and what does it involve?

When a baby is born with spina bifida their spinal cord is exposed and babies are operated on immediately to close the lesion. However, with the in utero fetal surgery, this operation takes place much earlier.

Cailin's Experience - ‘My rights: Independent living, activism and participation for young people with Spina Bifida and/ or hydrocephalus’

In October, IFSBH ran a 3 day course in Lisbon, Portugal, for people aged 18 – 35 called: ‘My rights: Independent living, activism and participation for young people with Spina Bifida and/ or hydrocephalus’. One of the key things all participants had to do on their return to their respective countries was share their experience. Cailin and Murrin attended from our organisation and this is Cailin's story in her own words.

Murrin's Experience - ‘My rights: Independent living, activism and participation for young people with Spina Bifida and/ or hydrocephalus’

In October, IFSBH ran a 3 day course in Lisbon, Portugal, for people aged 18 – 35 called: ‘My rights: Independent living, activism and participation for young people with Spina Bifida and/ or hydrocephalus’. One of the key things all participants had to do on their return to their respective countries was share their experience. Cailin and Murrin from our organisation attended and this is Murrin's story from her journey.

Strictly Come Prancing 2018 – Meet the Judges!

In only 6 weeks we welcome our new Strictly Come Prancing event!

Scottish stars get ready to wow at Strictly Come Prancing

A host of inspiring dancers, including some famous Scottish faces, are getting ready to do their bit for cha-cha-charity by taking part in Spina Bifida Hydrocephalus Scotland (SBH Scotland)’s first ever Strictly Come Prancing event.

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Our latest news

Vital Input from SBH Scotland Staff and Members on new IFSBH Report
'Ageing with Spina Bifida and Hydrocephalus' report available now

Got talent?
SBH Scotland are looking for talented line-up for their dazzling new online event

SBH Scotland welcome 'FABULOUS' new ambassador
Positive news in uncertain times

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