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Latest news

Our Christmas Appeal is here

We're delighted to launch our 2019 Christmas Appeal where we're asking everyone to get involved. Any donation large or small will help to ensure every baby, child, adult parent, family member and carer can receive our lifetime commitment of support in 2020 and beyond. If you are unable to donate, please share our appeal far and wide by following our posts on Facebook, Twitter, LinkedIn, Instagram or YouTube.

And we're off! They came and dazzled us at our 2019 Strictly Come Prancing Launch Night

The stars of SBH Scotland's Strictly Come Prancing 2019 glittered on our red carpet at the Launch Night for the event.

IF Call for applications for their 4th Youth with SBH "MY RIGHTS" Workshop (Estonia, 17-20 August 2019)

Last year two SBH Scotland members were accepted onto the International Federation for Spina Bifida and Hydrocephalus (IFSBH) workshop on your rights as a young person living with disability. Cailin and Murrin (pictured) both thoroughly enjoyed the experience. Now the IFSBH are asking for people to apply for this years FREE workshop.

Family Fundraising Event Raises a Staggering £21,000

A Glasgow family has raised more than £21,000 for Spina Bifida Hydrocephalus Scotland, in memory of their brother who had spina bifida.

In Utero Surgery for Spina Bifida

News broke last week of the first Scottish pregnancy to undergo the in utero fetal surgery for spina bifida. But what is this surgery and what does it involve?

When a baby is born with spina bifida their spinal cord is exposed and babies are operated on immediately to close the lesion. However, with the in utero fetal surgery, this operation takes place much earlier.

Cailin's Experience - ‘My rights: Independent living, activism and participation for young people with Spina Bifida and/ or hydrocephalus’

In October, IFSBH ran a 3 day course in Lisbon, Portugal, for people aged 18 – 35 called: ‘My rights: Independent living, activism and participation for young people with Spina Bifida and/ or hydrocephalus’. One of the key things all participants had to do on their return to their respective countries was share their experience. Cailin and Murrin attended from our organisation and this is Cailin's story in her own words.

Murrin's Experience - ‘My rights: Independent living, activism and participation for young people with Spina Bifida and/ or hydrocephalus’

In October, IFSBH ran a 3 day course in Lisbon, Portugal, for people aged 18 – 35 called: ‘My rights: Independent living, activism and participation for young people with Spina Bifida and/ or hydrocephalus’. One of the key things all participants had to do on their return to their respective countries was share their experience. Cailin and Murrin from our organisation attended and this is Murrin's story from her journey.

Strictly Come Prancing 2018 – Meet the Judges!

In only 6 weeks we welcome our new Strictly Come Prancing event!

Scottish stars get ready to wow at Strictly Come Prancing

A host of inspiring dancers, including some famous Scottish faces, are getting ready to do their bit for cha-cha-charity by taking part in Spina Bifida Hydrocephalus Scotland (SBH Scotland)’s first ever Strictly Come Prancing event.

GDPR is finally here!

Unless you've been lucky enough to have been away for the past couple of months in some exotic location, the chances are you have not only heard about GDPR but are, by now, very tired of hearing about it!

Global's Make Some Noise campaign donates £80,000 to SBH Scotland

SBH Scotland are delighted to announce that Global's Make Some Noise Campaign have generously donated £80,000 to our Be All You Can Be Project. We are truly overwhelmed and can't thank everyone who took part in the campaign enough for their amazing support.

New stats reveal 91% of UK women have insufficient folate levels to support a reduction in neural tube defects

A study carried out on behalf of Public Health England and the Food Standards Agency which has been published today (16 March 2018), has revealed as many as 91% of women of childbearing age (16 – 49) in the UK are at increased risk of a neural tube defect (NTD) affected pregnancy due to a folic acid deficiency.

Scottish Wit launched in time for World Book Day

Billy Connolly, Ewan McGregor and Lorraine Kelly are just some of the iconic Scots featuring in a new book of Scottish humour.

Support for Mortgage Interest benefit changes April 2018 - What you need to know

SBH Scotland has received many calls regarding letters from the DWP about Support for Mortgage Interest (SMI) benefit. The wording of the letter is causing much confusion and uncertainty so we’ve put together a brief overview.

UK Government urged to add folic acid to flour after new study

A study published in Public Health Reviews has revealed previous data showing the set upper limit of folate was flawed. The experts involved are now urging the Department of Health to approve the fortification of flour with folic acid in order to help reduce neural tube defects (NTD), such as spina bifida, in unborn babies.

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Our latest news

Our Christmas Appeal is here
SBH Scotland's new Christmas Appeal is launched with a little bit of celebrity sparkle from BBC Strictly It Takes Two star Ian Waite and Scene Radio's Mr Fabulous!

"My mantra is, tell me I can't, and I will show you that I can"
On World Spina Bifida and Hydrocephalus Day, SBH Scotland member, Elizabeth Grant, shares some of her own insights into living with a disability and what it means to her.

And we're off! They came and dazzled us at our 2019 Strictly Come Prancing Launch Night
The stars of SBH Scotland's Strictly Come Prancing 2019 glittered on our red carpet at the Launch Night for the event.

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