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Latest news

IF Call for applications for their 4th Youth with SBH "MY RIGHTS" Workshop (Estonia, 17-20 August 2019)

Last year two SBH Scotland members were accepted onto the International Federation for Spina Bifida and Hydrocephalus (IFSBH) workshop on your rights as a young person living with disability. Cailin and Murrin (pictured) both thoroughly enjoyed the experience. Now the IFSBH are asking for people to apply for this years FREE workshop.

Family Fundraising Event Raises a Staggering £21,000

A Glasgow family has raised more than £21,000 for Spina Bifida Hydrocephalus Scotland, in memory of their brother who had spina bifida.

In Utero Surgery for Spina Bifida

News broke last week of the first Scottish pregnancy to undergo the in utero fetal surgery for spina bifida. But what is this surgery and what does it involve?

When a baby is born with spina bifida their spinal cord is exposed and babies are operated on immediately to close the lesion. However, with the in utero fetal surgery, this operation takes place much earlier.

Cailin's Experience - ‘My rights: Independent living, activism and participation for young people with Spina Bifida and/ or hydrocephalus’

In October, IFSBH ran a 3 day course in Lisbon, Portugal, for people aged 18 – 35 called: ‘My rights: Independent living, activism and participation for young people with Spina Bifida and/ or hydrocephalus’. One of the key things all participants had to do on their return to their respective countries was share their experience. Cailin and Murrin attended from our organisation and this is Cailin's story in her own words.

Murrin's Experience - ‘My rights: Independent living, activism and participation for young people with Spina Bifida and/ or hydrocephalus’

In October, IFSBH ran a 3 day course in Lisbon, Portugal, for people aged 18 – 35 called: ‘My rights: Independent living, activism and participation for young people with Spina Bifida and/ or hydrocephalus’. One of the key things all participants had to do on their return to their respective countries was share their experience. Cailin and Murrin from our organisation attended and this is Murrin's story from her journey.

Strictly Come Prancing 2018 – Meet the Judges!

In only 6 weeks we welcome our new Strictly Come Prancing event!

Scottish stars get ready to wow at Strictly Come Prancing

A host of inspiring dancers, including some famous Scottish faces, are getting ready to do their bit for cha-cha-charity by taking part in Spina Bifida Hydrocephalus Scotland (SBH Scotland)’s first ever Strictly Come Prancing event.

GDPR is finally here!

Unless you've been lucky enough to have been away for the past couple of months in some exotic location, the chances are you have not only heard about GDPR but are, by now, very tired of hearing about it!

Global's Make Some Noise campaign donates £80,000 to SBH Scotland

SBH Scotland are delighted to announce that Global's Make Some Noise Campaign have generously donated £80,000 to our Be All You Can Be Project. We are truly overwhelmed and can't thank everyone who took part in the campaign enough for their amazing support.

New stats reveal 91% of UK women have insufficient folate levels to support a reduction in neural tube defects

A study carried out on behalf of Public Health England and the Food Standards Agency which has been published today (16 March 2018), has revealed as many as 91% of women of childbearing age (16 – 49) in the UK are at increased risk of a neural tube defect (NTD) affected pregnancy due to a folic acid deficiency.

Scottish Wit launched in time for World Book Day

Billy Connolly, Ewan McGregor and Lorraine Kelly are just some of the iconic Scots featuring in a new book of Scottish humour.

Support for Mortgage Interest benefit changes April 2018 - What you need to know

SBH Scotland has received many calls regarding letters from the DWP about Support for Mortgage Interest (SMI) benefit. The wording of the letter is causing much confusion and uncertainty so we’ve put together a brief overview.

UK Government urged to add folic acid to flour after new study

A study published in Public Health Reviews has revealed previous data showing the set upper limit of folate was flawed. The experts involved are now urging the Department of Health to approve the fortification of flour with folic acid in order to help reduce neural tube defects (NTD), such as spina bifida, in unborn babies.

Question of Burns raises record £57K

Spina Bifida Hydrocephalus Scotland (SBH Scotland) has raised £57,000, at its annual “A Question of Burns” supper.

Andy Nicol and Margo Whiteford CBE

The ILF Scotland Transition Fund is now OPEN

ILF Scotland has now opened the Transition Fund! The new ILF scheme will be a broad discretionary fund, that will provide short term awards, to support disabled people to live independently.

Peru Trek 2018 - Your questions answered

We've had a lot of interest in our Peru Trek 2018 with Global Adventures but understandably many of you have questions before signing up. To help you out we've compiled a short list of the most popular questions you have. If you still would like further information please don't hesitate to contact Lynsey, our Peru Trek Co-ordinator or read more on our Peru page.

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Our latest news

Get involved: It's here the UK Government’s Consultation on Mandatory Fortification of Flour with Folic Acid
Get involved: It's here the UK Government’s Consultation on Mandatory Fortification of Flour with Folic AcidHave your views heard on the UK consultation on adding folic acid to flour

IF Call for applications for their 4th Youth with SBH "MY RIGHTS" Workshop (Estonia, 17-20 August 2019)
Exciting opportunity for young adults with Spina Bifida and Hydrocephalus

Family Fundraising Event Raises a Staggering £21,000
Paul McGill honours the memory of his brother Michael, who would have been 50 in February, with a spectacular fundraising event for SBH Scotland.

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