Last year had a devastating impact on SBH Scotland’s annual income and we hope to raise £30K through our Golf Day and We Love Lunch events in 2021 to help continue lifeline support including services co-ordinating check-ins, online groups, essential food, heating, personal care, housing and benefits developed for members during lockdown in order to reduce isolation and support better mental health and wellbeing.
Read the report
SBH Scotland continues to offer care and support to all those affected by spina bifida and/or hydrocephalus in Scotland. Please call us on 03455 211300 if you require information or support or email us
If you haven't booked your place yet, it's not too late! A Question of Burns is taking place on Thursday 23rd January at the Glasgow Hilton and we have a few tables remaining. SBH Scotland member and Question of Burns Co-Host, Ella Chambers, reminds us to get our tickets for the spectacular corporate Burns Supper Event.
We're delighted to launch our 2019 Christmas Appeal where we're asking everyone to get involved. Any donation large or small will help to ensure every baby, child, adult parent, family member and carer can receive our lifetime commitment of support in 2020 and beyond. If you are unable to donate, please share our appeal far and wide by following our posts on Facebook, Twitter, LinkedIn, Instagram or YouTube.
The stars of SBH Scotland's Strictly Come Prancing 2019 glittered on our red carpet at the Launch Night for the event.
Get involved: It's here the UK Government’s Consultation on Mandatory Fortification of Flour with Folic Acid
IF Call for applications for their 4th Youth with SBH "MY RIGHTS" Workshop (Estonia, 17-20 August 2019)
Last year two SBH Scotland members were accepted onto the International Federation for Spina Bifida and Hydrocephalus (IFSBH) workshop on your rights as a young person living with disability. Cailin and Murrin (pictured) both thoroughly enjoyed the experience. Now the IFSBH are asking for people to apply for this years FREE workshop.
A Glasgow family has raised more than £21,000 for Spina Bifida Hydrocephalus Scotland, in memory of their brother who had spina bifida.
News broke last week of the first Scottish pregnancy to undergo the in utero fetal surgery for spina bifida. But what is this surgery and what does it involve?
When a baby is born with spina bifida their spinal cord is exposed and babies are operated on immediately to close the lesion. However, with the in utero fetal surgery, this operation takes place much earlier.
Cailin's Experience - ‘My rights: Independent living, activism and participation for young people with Spina Bifida and/ or hydrocephalus’
In October, IFSBH ran a 3 day course in Lisbon, Portugal, for people aged 18 – 35 called: ‘My rights: Independent living, activism and participation for young people with Spina Bifida and/ or hydrocephalus’. One of the key things all participants had to do on their return to their respective countries was share their experience. Cailin and Murrin attended from our organisation and this is Cailin's story in her own words.