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IF Call for applications for their 4th Youth with SBH "MY RIGHTS" Workshop (Estonia, 17-20 August 2019)

Last year two SBH Scotland members were accepted onto the International Federation for Spina Bifida and Hydrocephalus (IFSBH) workshop on your rights as a young person living with disability. Cailin and Murrin (pictured) both thoroughly enjoyed the experience. Now the IFSBH are asking for people to apply for this years FREE workshop.

Murrin and Cailin at the 3rd My Rights workshop in 2018

Apply to take part in an exciting training opportunity, designed to support participation and independent living of youth with spina bifida and hydrocephalus!

Are you a young person (aged 18-35) living with spina bifida and/or hydrocephalus (SB/H)? Are you a member of a SB/H group or would like become one? Then you are welcome to apply for this free training!

This FREE 4-day training for young people with SB/H will take place on 17-20 August 2019 in Tallinn (Estonia).

Why this training?

Because young people with disabilities, including SB/H, are often subject to discrimination and prejudice. Sometimes, the society does not see them as valuable and equal citizens. If you have a disability, it may be more difficult to go to a university, get a job, or travel independently. You may be prevented from speaking for yourself, and the family or professionals get to make the decisions about your life.

The International Federation want to change that!

The aim of this training is to support you, a young person with a disability, in your journey towards self-confidence and independence! The training keywords are citizenship, leadership and full participation.

What is this training about?

During the training you will learn about the rights-based approach to independent living for youth with disabilities, ways to defend your rights in daily situations and cultivate your ability to make your voice heard

Our team of international experts will help you understand the human rights of persons with disabilities, how you can use the UN Convention on the Rights of Persons with Disabilities (and why you, as a young disabled person, should know it), and provide you with practical tools on activism.

In addition, the training will provide safe space discussions on issues, such as body image, sexuality and mental health.

You will develop a personal action plan to help you advocate on an issue you feel passionate about.

Who should take part in the training?

Young (18-35) people living with SB/H who:

  • Want to be more active in their local SBH groups (or would like to start a group) and need skills to support them
  • Are committed to organising an activity to promote independence and participation of young people with SB/H in the local community
  • Are prepared to embrace the intensity of the course, and not remain its passive listeners
  • Are able to attend the full duration of the training course (4 days)
  • Are prepared to organise a local level activity (write articles, organise a workshop, meet with decision-makers…) using the knowledge received at the training
  • Have a working level of English (able to speak, read and write it)

How long will the training be?

4 full working days. The programme will be designed to include some rest and entertainment time as well.


17-20 August 2019. Arrival is foreseen for 16 August, and departure on 21 August.


Laulasmaa, 35 km from Tallinn (Estonia). (We organise local transport, don’t worry!)

Technical details

Participation in the training for selected participants with SB/H is free of charge. Your travel, accommodation (5 nights) and meals during the training will be paid for.

How to apply?

Fill out the application form by 15 July 2019. You will be informed of the outcome of your application on 17 July 2019.


Read more about Cailin's Experience

Read more about Murrin's experience

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