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Unlock your right to health on World Spina Bifida and Hydrocephalus Day '21

World Spina Bifida Hydrocephalus Day 2021 Logo. Hands coming out of globe.

October 25th is World Spina Bifida and Hydrocephalus Day. This day was established and designated by the International Federation of Spina Bifida and Hydrocephalus (IFSBH) General Meeting in Guatemala in 2011 with the aim of raising awareness and understanding about Spina Bifida and Hydrocephalus (SBH). It also serves as a means to advocate and promote the rights of persons with these conditions. The WSBHD was held for the first time on 25 October 2012 at the European Parliament in Strasbourg. Find out more

Unlocking your right to health

This year the IFSBH are focusing on everyone's right to health. Health is an enabler of inclusion. Article 25 of the UN Convention on the Rights of Persons with Disabilities (UNCRPD) states that “persons with disabilities have the right to the enjoyment of the highest attainable standard of health without discrimination on the basis of disability”.

The right to health in accordance with article 25 of the UNCRPD is a high priority for IF and the global SBH community. Access to timely diagnosis, information, treatment and multidisciplinary care is still unattainable for many in the global SBH community.

With stigma, discrimination and lack of awareness creating further barriers to the enjoyment of the highest attainable standard of health. Therefore, IF shares with us the theme for World Spina Bifida and Hydrocephalus Day 2021 of “Unlock Your Right to Health”.

The barriers may vary between communities and individuals but the goal of advancing the right to health for all individuals with SBH remains the same. With the WSBHD21 theme “Unlock Your Right to Health”, IFSBH invites SBH associations, individuals with SBH and their families and any other interested stakeholders to explore the barriers to the right to health in their communities and the solutions needed to overcome them.

To better understand, IFSBH have put together the following film.

Events to get involved in:

25th October: Main Event from the 25th October can be watched here

27th October: SBH Scotland's own staff member Kevin O Donnell will be speaking at the 'Aging well with spina bifida and hydrocephalus' event on the 27th October. Register HERE to be sent a link.

29th October: “Digital Escape Room - Unlock Your Rights” side-event” WSBHD21 side-event. The “Digital Escape Room - Unlock Your Rights” side-event is organised by the IF International Youth Group on October 29th at 2PM - 3PM (CEST) to celebrate with you the World Spina Bifida and Hydrocephalus Day 2021.
The event is a digital escape room. Participants will work together to solve a series of clues. Once a group has found all of the clues, the “master of the ceremony” will greet them into the main room. The first team to escape the room is the winner! The objective of this event is to create a festive atmosphere to celebrate WSBHD21 as well as to educate youth with SBH on the UNCRPD.

Register to this side-event here.

Find out the agenda and more information here.

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