Spina Bifida Hydrocephalus Scotland (SBH Scotland) has long advocated folic acid fortification in flour. Our Chief Executive, Andrew H D Wynd, said, “We are happy to hear that Scottish Government are now urging UK Ministers to move the fortification process forward. The recent Scientific Advisory Committee on Nutrition (SACN) letter to Health Ministers highlighted serious concerns arising from the delay in fortifying flour so the UK need to be pushing for measures to be put into place to increase the folate status of women. In Scotland it is thought that nearly 50% of pregnancies are unplanned and mother’s to be will not have increased folic acid intake prior to conception. SBH Scotland believe that mandatory fortification will make a significant difference to the many planned and unplanned pregnancies diagnosed with Neural Tube Defects, of which spina bifida is the most common.”
He continues, “Additionally, if the mandatory fortification of flour with folic acid is not proceeding in the short term, then advice must be put in place to ensure that woman who are sexually active and of child bearing age are aware of the importance taking folic acid prior to conception and not once pregnancy is confirmed, which is the norm at present.”
Scotland specific issues…
Scotland has more live births per head of population with spina bifida than anywhere else in the UK. Each week in Scotland one pregnancy is affected by spina bifida and/or hydrocephalus. Possibly due to religious and cultural differences, only 50% of pregnancies are terminated in Scotland as compared with 80% in the rest of the UK.
Taking folic acid supplements, at the correct recommended dose prior to conception, could prevent over 70% of these pregnancies from being affected and reduce both the number of those born with the condition and the number of pregnancies terminated.
Children born with spina bifida often have paralysis in the lower limbs, urological, neurological and orthopaedic problems which often become more significant throughout life. Fortification of flour would reduce the number of babies born with this life-long disability.
Parents in Scotland are offered impartial and non-judgmental advice by the SBH Scotland to enable them to make informed decisions about their pregnancy. Whatever the final decision, SBH Scotland will always be there for support and advice whenever needed. If you are affected by any of the issues associated with spina bifida or hydrocephalus, you can call the SBH Scotland Family Support Service helpline on 08459 11 11 12 or visit www.sbhscotland.org.uk
Further details on Folic Acid
We have a great opportunity for a Family Support Worker to join our Stronger Links: Stronger Families Project. The post is home Based covering Edinburgh / Lothian / Fife / Borders.
Visit our Vacancies Page for further details.
Rebecca Cottage has been awarded the 'Rod McFarlane Award for 2015' by Angus Access Panel.
Each year the Award is presented to buildings or facilities in Angus which demonstrate the best examples of positive efforts being made to encourage the inclusion of disabled people. 4 buildings were nominated this year.
Rebecca Cottage is our adapted, wheelchair accessible holiday cottage in Carnoustie. We offer subsidised rates for all SBH Scotland members and a reduction for any blue badge holders.
The design and improvements which led to our nomination included the installation of a stair lift and the more recent installation of a specialist tracking hoist from the ground floor bedroom to the bathroom.
Angus Access Panel said,
"Rebecca Cottage is a first class example of how design and equipment can be combined to fully facilitate a building for the use of families with a disabled person to use for holiday accommodation."
Pictured is Lynne Fenton (architect from Brunton Design Studio who designed the changes in the Cottage), Agnes Mackay (Chair of Angus Access Panel), Alec King (Angus Depute Provost) and David Dewar (Vice Chair of Angus Access Panel).
Spina Bifida Hydrocephalus Scotland are now recruiting for a new Family Support Worker to be part of their Stronger Links: Stronger Families Project.
The position is home based covering Edinburgh/Lothian/Fife/Borders
This post is funded by the Big Lottery Fund until September 2017.
For further details visit our vacancies page.
Specialist charity, Spina Bifida Hydrocephalus Scotland (SBH Scotland), formerly Scottish Spina Bifida Association, is celebrating its 50th year of support and advocacy for people across the country affected by these lifelong, complex conditions.
Spina Bifida Hydrocephalus Scotland was formed in 1965 by group of parents who each had a child with spina bifida and/or hydrocephalus. Now 50 years later, the charity support over 3,500 children, young people, adults, their family members and carers every year in Scotland whilst retaining their family orientated approach.
SBH Scotland celebrated their 50th birthday on Sunday 25 October which coincided with World Spina Bifida and Hydrocephalus Day, an international day to raise awareness of the conditions.
The event marks the launch of SBH Scotland’s ‘With A Little Help From Our Friends’ campaign, a yearlong anniversary appeal with a host of fundraising events and activities that supporters can take part in; all with the aim of raising £1 million to continue their full range of support. Past years have had month-long campaigns and the charity are hoping supporters will come together to develop innovative ways such as coffee mornings, comedy nights and duck races to raise funds to mark their 50th year.