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Latest news

Disability Rights Workshop comes to Edinburgh

Are you an SBH Scotland member aged 18-35 and interested in the rights of those with disabilities?

The international Federation for Spina Bifida and Hydrocephalus are working with Spina Bifida Hydrocephalus Scotland (SBH Scotland) to offer a FREE 3 day workshop to 10 people interested in the rights of those with disabilities.

This 3-day intensive training session will be held on 13-15 October 2017 in Edinburgh. Arrival for the course is the evening of the 12th of October and the training will commence on the 13th of October.

If you are a young person, aged 18-35, living with spina bifida and/or hydrocephalus and would like to learn more about your rights and how to advocate them, then we'd like you to apply. There are limited spaces so you need to apply by Monday 18th September and the 10 successful candidates will be chosen at random.

The aim is to help you understand the human rights of persons with disabilities and learn practical skills that will allow you to use the Convention within your community. These human rights are protected under the United Nations (UN) Convention on the Rights of Persons with Disabilities (the Convention).

If you would like to apply, please contact Lindsay.CM@sbhscotland.org.uk or 07388 996717 for further details and complete this application form.

Fancy Making Some Noise at Pedal for Scotland?

SBH Scotland Makes Some Noise

SBH Scotland are one of the nominated charities who will receive funding from Global Radio's 'Make Some Noise' charity appeal this year and we're asking everyone who'd like to support their appeal if they'd like to take part in Pedal for Scotland on Sunday 10th September in Glasgow.

Over 10,000 riders will be taking part in 6 cycling routes across Scotland; From the wee janut to the Big Belter - if you like cycling this is a great challenge.

Make Some Noise offering those taking part free entry into any of the distances as long as you pledge to raise £100 for Make Some Noise.

To get signed up

  1. Click on this link:
  2. Get registered and when prompted use the code for the Heart team - HRTFM17, which will give you free entry
  3. This will be for any ride – 10 mile Wee Jaunt Edinburgh, 45 mile Classic Challenge or the 93 mile Big Belter.
  4. For your fundraising Makes Some Noise ask that you use this page

Don’t worry if you can’t get the £100 before September 10th as you have until the start of October to fundraise!

By signing up for Pedal for Scotland you also agree with the terms and conditions which are detailed below.

Health & Wellness Clinic

Nurse picture

SBH Scotland are offering ‘Health and Wellness’ clinics for all adults with spina bifida and/or hydrocephalus in Scotland. The aim of these health checks are to support you in developing a wide range of self-management strategies.

The clinics we offer are simple, effective, confidential and are carried out by our nurse specialist in a fully equipped treatment room at our Centre, The Dan Young Building, in Cumbernauld. The clinics take place once a month on a Saturday from 10am - 4:30pm.

Potential problems can often be picked up and dealt with to prevent more serious health problems developing. And another part of the health check can also focus on your emotional wellbeing. Many adults who are living with a long term health condition can feel isolated or low in mood and are disinclined to go out or be involved in any social activities. We want you to talk to us about how you’re feeling so we can also support you.

We are eager to have an ongoing engagement with you so at the end of each appointment we’ll look at your health objectives and ways in which you can achieve set goals.

Don't live locally but would like a health check? Please call us to discuss, you don’t have to come to the Centre - Skype and telephone appointments are available. We’re here to make things as easy as possible for you.

If you are interested in having a health check or would like more information please call us on 01236 804944 or email teleclinic@sbhscotland.org.uk

Vegas is coming to Peterhead - Book your tickets now!

GCasino logo

The award winning Peterhead volunteer committee, Shimmer and Sparkle, are hosting another outstanding fundraising event in aid of SBH Scotland and this time you could win a holiday to LAS VEGAS!!!

Casino Night is taking place on Saturday 23rd September at the Palace Hotel and for only £45pp you'll be treated to a sparkling drinks reception, sumptuous 3 course meal, in house casino, live entertainment and disco til you drop!

Best of all there'll be prizes galore to win throughout the evening with the star prize being a trip for two to dazzling Las Vegas!

Casino Night

But you have to be in it to win it so book your tickets today. Tickets are available by calling committee members Denise or Vicki by calling 07949 909879 or 07962 230856. Ticket information can also be requested by emailing our Fundraiser Lynsey.

GCasino logo

Special thanks to Grosvenor Casinos in Aberdeen for generously sponsoring the in-house casino.

European Accessibility Act is Under Threat

Millions of people in Europe with disabilities are still excluded from using basic products and services that are taken for granted by others such as withdrawing money from an ATM, entering a bank, a school, a university or any public building, using the underground etc. Europe needs a strong and ambitious European Accessibility Act but currently it's under threat!

European Accessibility Act

Proposed back in 2015, the European Accessibility Act (EAA) hoped to enhance the rights and reduce discrimination across Europe for those living with disabilities in all areas of life; from travel and healthcare to banking and product pricing. Since then much of the proposed Act has been under negotiation with compromises sought on issues such as the built environment, public procurement, transport or the definition of "persons with functional limitations".

Currently proposed amendments water down the Act to the extent that it becomes meaningless.

With the European Accessibility Act under threat we’d like you to join the International Federation of Spina Bifida and Hydrocephalus in engaging your MEP’s, asking them to support the rights of persons with disabilities by substantially amending the Internal Market Committee of the European Parliament's (IMCO) report in the plenary in June and promote a strong and ambitious Accessibility Act.

The final plenary European Parliament vote is scheduled for mid-June so we need to take action now!

Why is the European Accessibility Act relevant to persons with spina bifida and/or hydrocephalus (SBH)?

  • It will enhance their right to independent living as they will be able to manage themselves further in aspects of life such as banking, e-commerce and other services.
  • Thanks to increased cross border trade and mobility, persons with SBH will be able to profit from a more competitive price of products and services
  • more products and services will be accessible and therefore easier to use in the areas of ICT, transport, banking and retail
  • accessibility of transport (infrastructure, ticketing machines, booking processes, information etc) will be improved (if transport stays as part of the EAA), which will enhance the possibility for persons with SBH to travel.
  • accessible transport and therefore increased mobility will improve the participation of persons with SBH in education, labour market and society in general
  • the EAA will provide a framework for accessibility requirements which can serve as a point of reference for persons with SBH when they travel to other countries and want to use services or products there
  • EAA will reduce discrimination of persons with disabilities including persons with SBH in the internal market by providing (certain) accessible products and services

What can you do?

  • Spread the message on your social media channels using the hashtag: #AccessibilityAct
  • Say why accessibility is important for you?
  • Post pictures of inaccessible situations to illustrate what the problems are, curbs, buses, atm machines etc
  • Tag in your MEPs and other government officials.

Want more information?

For even more information please visit IFSBH’s website or visit the European Disability Forum

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