Latest news
Keep up-to-date with what's happening at SBH Scotland.
Hospital Saturday Fund donate £14,000 to SBH Scotland
The Hospital Saturday Fund donated grants to twenty-five Scottish charities at a special reception hosted at Glasgow City Chambers on 29 February 2024. In total, £110,000 was donated to the charities at the event, which was hosted by The Lord Provost of Glasgow, Councilor Jacqueline McLaren.
Spina Bifida Hydrocephalus Scotland, received a grant to fund a specialist nurse in the West of Scotland and other charities such as Clan Cancer Support received grants which will be used to fund support such as complementary therapy sessions.
Speaking at the reception The Lord Provost of Glasgow, Jacqueline McLaren, celebrated the extraordinary work of all the charities receiving donations from The Hospital Saturday Fund.
Christmas Appeal is Launched
Through unexpected news or difficult times SBH Scotland will be there so no one is left to cope alone. Each year we have to raise over £1 million to provide dedicated support. This Christmas we've launched a new appeal so we can raise £20,000 towards our annual goal. Anything you can donate will be gratefully received and will allow us to provide support and information for families like Jack’s.
Nicola and Chris Heaton were going to a routine 20 week scan when they received the news that their unborn baby had spina bifida. Nicola said,
“It was such a shock. We didn’t really know anything about it, you never expect or want to hear that news. We were given the worst case scenario by doctors about what lay ahead and then were left on our own to get on with it ourselves and make our own decisions. We wouldn’t have known where to turn if we hadn’t found SBH Scotland. From that first phone call to SBH Scotland we never looked back. They were so reassuring and positive. They also said it was a beginning, not the end and that they would be there for us every step of the way. They were absolutely right about everything - Jack is a dream come true. He’s just the happiest, bubbliest boy. We couldn’t imagine our world without him.”
Jack is now 3 and thriving! Scooting about in one of the Scotland’s smallest wheelchairs, he’s getting more independent each day. Since diagnosis SBH Scotland have been able to provide support and information for the Heaton family via phone, in our support centre or in hospital.
Chris says, “The doctors are amazing but they give information in black and white. When we spoke to SBHS they added the colour and life. It was everything we needed at that time.”
PLEASE DONATE this Christmas so SBH Scotland can add colour and life into other families lives.
Keeping connected in a crisis
The team at SBH Scotland have risen to all the challenges the current virus pandemic has thrown at it and are doing all they can to keep connected with SBH Scotland members at a time when feeling socially isolated is at its height.
At Spina Bifida Hydrocephalus Scotland (SBH Scotland) our members and staff are our utmost priority and in a time of constant change that sentiment remains stronger than ever.
Although the Coronavirus has brought with it many restrictions and uncertainty, SBH Scotland members are not alone in coping with the challenges it may bring them.
SBH Scotland have worked to continue a vital support service albeit in slightly different formats than normal.
Until further notice the Dan Young Building, our Head Office in Cumbernauld, is closed to members and following government guidelines we have made the decision to stop home visits temporarily. We have also postponed our support and social groups in their traditional formats. However, our Family Support Team remain dedicated to supporting members and are there therefore offering a:
Helpline: 03455 211 300. Call us Monday to Friday between 9am and 5pm and we will be there to talk with you or just be a listening ear for your concerns.
Check-In Service: Regular contact through a weekly phone service to check in and make sure members are doing ok.
Coronavirus Hub and Information: We have a dedicated page for information relating to the Coronavirus. If members have any concerns of how they could be affected they can also click on our link and have a video chat with one of our clinical team.
Online Groups and workshops: Our team are looking at a range of technology so we can continue social interactions between members online as well as launch online workshops.
YouTube: Our YouTube channel is home to many useful resources during times such as these including Have A Go films to encourage children's play and development and our support worker Kerry has also been filming 'dancercise' videos for thos with limited mobility. Visit our channel now to subscribe.
Facebook private groups: We continue to have dedicated private spina bifida and hydrocephalus groups for SBH Scotland members on Facebook.
No one knows the long term effect that the Coronavirus will have in Scotland but whatever happens the SBH Scotland team are doing all they can to stay connected to their comunity. Contact us if you need support.
Here's our Ella with a quick reminder!
If you haven't booked your place yet, it's not too late! A Question of Burns is taking place on Thursday 23rd January at the Glasgow Hilton and we have a few tables remaining. SBH Scotland member and Question of Burns Co-Host, Ella Chambers, reminds us to get our tickets for the spectacular corporate Burns Supper Event.
Call us today on 03455 211 600 to book or go online.
Our Christmas Appeal is here
We're delighted to launch our 2019 Christmas Appeal where we're asking everyone to get involved. Any donation large or small will help to ensure every baby, child, adult parent, family member and carer can receive our lifetime commitment of support in 2020 and beyond. If you are unable to donate, please share our appeal far and wide by following our posts on Facebook, Twitter, LinkedIn, Instagram or YouTube.
To add to the magic of Christmas we'd like to thank the lovely Ian Waite and James Smith for kindly getting involved with our appeal film.
Enjoy and a very merry festive season to all!
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